XLRP

The transcription discusses the challenges and impact of living with XLRP, a condition that causes vision loss. It highlights the feelings of anxiety and fear, the difficulty in finding answers, and the frustration of discovering the truth. However, it also offers hope by mentioning the possibility of making diagnosis easier, providing access to genetic testing, and developing a treatment for XLRP. The message encourages individuals and healthcare providers to work together to improve the lives of those affected by XLRP. The crushing weight of anxiety and fear as your world slowly gets smaller and darker. Details blur into the background. Night blindness becomes worse. Answers escape you and the experts. And when you finally learn the truth, it's almost worse than not knowing. But what if there was hope? Making a diagnosis easier. Creating access to genetic testing. Revealing a first-ever treatment for XLRP. Together we can help illuminate the lives of those impacted with XLRP by ensuring health care providers support, diagnose, test, and eventually treat. The future is bright. Let's move forward together.